As a person who was diagnosed with CFS/ME I wanted to share some poetry which I had written when I was ill. I’m sure you will identify with how I felt at these times if you have CFS/ME or a similar health issue.
Roll up! Roll up! It’s the ride of your life
The scary old coaster of trouble and strife
One day your you’re cruisin’ and having a ball
The next day you’re spiralling in a free-fall
The Coaster is plummeting all on its own
Down to the depths of the dark cavern zone
It’s eerie and cold and it’s so hard to see
The Coaster takes off like it wants to be free.
Just like the coaster you’re down in the crypt
In a mind-body weakness you’re hopelessly gripped
The cobwebs that drape through your mind are so dense
It’s a dark place to be and the pain so intense
The next turn is upward with hope on the rise
That the daylight returns as you open your eyes
You lift up your head and are greeted by light
The coaster is climbing and gaining some height
Up through the sunshine the day is unfurled
It’s a good day today, you’re on top of the world!
Pain free and coping with life’s great demands
The coaster is soaring above pleasant lands
Next you’re thrust downward, you’re stripped of all hope
Headed for Hell, it’s a slippery slope.
A twist in the track throws your head in a whirl
A corkscrewing helix, a devilish curl.
It tosses you down to the depths of despair,
Fatigue, pain and numbness return from thin air
Another dim corner, a chamber of gloom
Where fiends, ghouls and demons delight at your doom.
And then out of nowhere you feel a sharp jolt
As the coaster brakes harshly and creaks to a halt.
Trapped there, immobile, Imprisoned by pain
You’re stuck on the scariest spookiest train
The old Ghoster-Coaster of Chronic Fatigue
A carriage of torment who’s in his own league.
The Coaster has always new tricks up his sleeve
You’re gripped by his power, you can’t ever leave.
He’ll twist you and turn you and spin you around
He’ll lift you then dash all your hopes to the ground.
Passengers riding can never walk free
As all ticket holders are cursed with M.E.!